Join NDB and IDDB research for Dupuytrens
International Dupuytren Data Bank (IDDB)
is a research project with a target of finding the cause and cure for Dupuytren Disease and related conditions. The IDDB is sponsored by the Dupuytren Foundation in partnership with the National Data Bank for Rheumatic Diseases. The IDDB is free for all participants, and has three phases:
- Survey people with and without Dupuytren disease for clues about their biology.
(Enroll and fill out follow-up progress surveys online)
- Collect blood samples from those surveyed.
(We’ll let you know how to do this.)
- Compare survey results with DNA and other blood tests to develop prevention rather than procedures.
(Enroll and fill out follow-up progress surveys online)
(We’ll let you know how to do this.)
Why Should I Participate?
- Participation is easy. It can be done online from home or with a postage-paid questionnaire.
- Your answers will help others without needing to see a doctor or change treatment.
- No obligation for joining, it's free!
- You will have full access to your results when you finish.
- Receive a free newsletter twice a year.
- Have the opportunity to help others like you get the answers they need.
- Be part of the global research project to find a cure for Dupuytren and related Diseases
The National Data Bank for Rheumatic Diseases is a world-renowned, non-profit, independent research group. Our mission is to improve rheumatic disorder outcomes and care by providing research information to doctors and to people with arthritis, fibromyalgia, lupus, or other related problems. The NDB has published numerous articles in reputable medical journals. Every six months more than 10,000 people contribute to this important research by volunteering approximately an hour of their time to answer questions about their condition and how it affects their lives. This is done online using our online Webquest system, or by completing paper questionnaires that we send in the mail.
The NDB is working with the independent non-profit Dupuytren Foundation to host the International Dupuytren Data Bank (IDDB). The goal of the IDDB is to correlate longitudinal clinical information with biomarker data on 10,000 Dupuytren patients to develop more effective, personalized treatment and eventually a cure for Dupuytren disease.
By participating in the NDB you'll be making a very important contribution to the treatment of rheumatic diseases. Patients who enroll not only are the foundation of the data base, but also have a voice in the research too - from scientific advisory boards, to suggestions on research questions and projects. Patients continually play an important part in improving the NDB and forwarding research in the field. We can't do it without your support!
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